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Hattie's Cancer Journey

My daughter Hattie was diagnosed with a rare form of cancer called botryoid rhabdomyosarcoma in July 2013 when she was 16 months old. After about a year and a half of chemotherapy, radiation and multiple surgeries, she was declared cancer free in December 2014. I'm posting a photo and short reflection every day in 2015 to celebrate the end of treatment and reflect on the journey.
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39. 8/30/2013 - Second trip to the Emergency Department.
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39. 8/30/2013 - Second trip to the Emergency Department.

We were recovering from the ED visit the night before and were hoping for a low key evening and ordered takeout Thai when Hattie spiked another fever. We trekked back to Children's and this time had a really long night. The doctors ran a series of tests to determine the cause of Hattie's fever but they couldn't find anything. She received another round of antibiotics and we waited for a long time for blood test results... only for a nurse to come back and say the original sample was contaminated and we would need to take another.

We grew impatient waiting for the second sample to come back. Hattie was pretty manic and didn't fall asleep until after midnight. Separate doctors and nurses kept coming in and asking us the same questions over and over again. We quickly learned that the ED is not a fun place to be. Doctors again couldn't figure out what caused the fever but let us go home after it came down after 3 am. We were all frustrated and exhausted.

  • 31. 8/23/2013 - Dad's New 'Do.
  • 32. 8/24 - 8/25/2013 - Quick trip to PTown.
  • 33. 8/27/2013 - At least there's music.
  • 34. 8/27/2013 - First overnight hydration.
  • 35. 8/27/2013 - Not feeling so well.
  • 36. 8/28/2013 - A long day with some silliness.
  • 37. 8/29/2013 - Solidarity.
  • 38. 8/29/2013 - First trip to the Emergency Department.
  • 39. 8/30/2013 - Second trip to the Emergency Department.
  • 40. 9/1/2013 - Back to her old tricks.
  • 41. 9/2/2013 - Horsing around with Auntie.
  • 42. 9/3/2013 - Stories with Auntie.
  • 43. 9/5/2013 - A blood draw gone wrong.
  • 44. 9/6/2013 - LADEE Launch. Wait, what's a rocket launch doing in a cancer retrospective?
  • 45. 9/9/2013 - A little sass.
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