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Hattie's Cancer Journey

My daughter Hattie was diagnosed with a rare form of cancer called botryoid rhabdomyosarcoma in July 2013 when she was 16 months old. After about a year and a half of chemotherapy, radiation and multiple surgeries, she was declared cancer free in December 2014. I'm posting a photo and short reflection every day in 2015 to celebrate the end of treatment and reflect on the journey.
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33. 8/27/2013 - At least there's music.
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33. 8/27/2013 - At least there's music.

It was time for another big chemo treatment of Vincristine, Actinomycin-D and the dreaded Cyclophosphamide (VAC). If you remember from an earlier post, that meant Hattie needed to be fully hydrated before treatment started and had to receive IV fluids for a day after treatment ended. This time we were brave and would be taking the IV fluids home with us to administer overnight.

Before we could get to that, we had to get the kid hydrated. Hattie was again "The Camel" and would not pee and the nurse couldn't test her hydration level. It was a long day in clinic while we waited for the Camel. We played music, watched some TV and I'm pretty sure she took a nap to delay things.

Hydration levels finally checked out and we were good to start chemo. This chemo was a bit rough on her stomach and she threw up a couple times. She was pretty snoozy and cuddly the rest of treatment. We went over the home hydration system as chemo finished up and then we were out the door with a hydration backpack, worried that we could damage her kidneys if something went wrong...

  • 31. 8/23/2013 - Dad's New 'Do.
  • 32. 8/24 - 8/25/2013 - Quick trip to PTown.
  • 33. 8/27/2013 - At least there's music.
  • 34. 8/27/2013 - First overnight hydration.
  • 35. 8/27/2013 - Not feeling so well.
  • 36. 8/28/2013 - A long day with some silliness.
  • 37. 8/29/2013 - Solidarity.
  • 38. 8/29/2013 - First trip to the Emergency Department.
  • 39. 8/30/2013 - Second trip to the Emergency Department.
  • 40. 9/1/2013 - Back to her old tricks.
  • 41. 9/2/2013 - Horsing around with Auntie.
  • 42. 9/3/2013 - Stories with Auntie.
  • 43. 9/5/2013 - A blood draw gone wrong.
  • 44. 9/6/2013 - LADEE Launch. Wait, what's a rocket launch doing in a cancer retrospective?
  • 45. 9/9/2013 - A little sass.
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