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Hattie's Cancer Journey

My daughter Hattie was diagnosed with a rare form of cancer called botryoid rhabdomyosarcoma in July 2013 when she was 16 months old. After about a year and a half of chemotherapy, radiation and multiple surgeries, she was declared cancer free in December 2014. I'm posting a photo and short reflection every day in 2015 to celebrate the end of treatment and reflect on the journey.
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18. 8/6/2013 - First chemo pt. 2.
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18. 8/6/2013 - First chemo pt. 2.

Two of the three chemo drugs were just a quick push. The next one was injected over about an hour and a half and we tried to keep H in the bed with TV and coloring books. We were really hoping for a nap but had no luck. It was tough - she really wanted to run around, especially after the steroids kicked in! We were able to keep her pretty well occupied and chemo wrapped up in the early evening.

One of the chemo drugs, cyclophosphamide, is highly toxic and can cause kidney damage if it stays in a body too long. Because of this, Hattie had to be hooked up to IV fluids for about 12-18 hours after the injection finished. Hattie stayed hooked up to an IV pump and we walked across the bridge from the Jimmy Fund Clinic and went up an elevator to check in at the oncology floor of Boston Children's Hospital.

Hattie was in generally good spirits as we got settled into our room. Hattie finally crashed and took a short nap with Kate before waking up to throw up all over her. Everyone got cleaned up and Hattie got some more anti-nausea medication and maybe some more steroids. We'd come to joke with other parents about kiddo roid rage. Hattie was certainly full of energy and attitude!

We watched some more TV, read some more stories, took a walk with our pump and changed many, many, many diapers. Hattie finally fell asleep with me a bit after 9 and we cuddled up for a bit. We were really exhausted and extremely appreciative of the nursing staff that would be helping out overnight.

  • 16. 8/5/2013 - All smiles before treatment started.
  • 17. 8/6/2013 - First chemo pt. 1.
  • 18. 8/6/2013 - First chemo pt. 2.
  • 19. 8/6/2013 - First chemo pt. 3.
  • 20. 8/7/2013 - First chemo pt. 4.
  • 21. 8/8/2013 - At least there's free Galaga.
  • 22. 8/9/2013 - Free hats, too.
  • 23. 8/11/2013 - Acting her age.
  • 24. 8/12/2013 - The weekend went fast.
  • 25. 8/13/2013 - At least there are free bendy straws!
  • 26. 8/14/2013 - Some painting.
  • 27. 8/16/2013 - Out for a walk.
  • 28. 8/18/2013 - I didn't do it!
  • 29. 8/20/2013 - Operation: Return Cancer Critters!
  • 30. 8/21/2013 - The Three Musketeers.
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